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Sharing a survey on behalf of the Canadian Dementia Learning and Resource Network (CDLRN).

"Understanding the Needs and Gaps in Support for People Living with Dementia”. 

Inviting people living with dementia, care partners, researchers, or health/social-care providers to take part, this study aims to identify the gaps in the community-based supports and services to meet the needs of people living with dementia and their care partners. We hope that the findings will help inform the development and improvement of programs and services.

The survey can be completed independently through the online link below or by phone call, or virtually (e.g., by Zoom) with a research assistant. We will then ask those who complete the survey if they would like to participate in an interview to share more about their experiences. 

The survey is available in English and French. If you are interested in participating, please click the link below:

https://uwaterloo.ca1.qualtrics.com/jfe/form/SV_9zt8MHsqa535Loy

If you want to complete the survey by phone or virtually with a research assistant, or if you have any questions, please contact Maral Ghodsi at mghodsib@uwaterloo.ca or the Schlegel-UW Research Institute for Aging at 519-904-0660.

The video is the pilot episode on the Stories for Caregivers YouTube channel. It will be available to view for one month while the team involved gathers community feedback. It has a very important message and is well worth the five minutes it takes to watch. 

Please feel free to share with people you feel might be interested in the video.

NEW YORK, NY, June 13, 2023 — Reimagining Dementia: A Creative Coalition for Justice (Coalition) is launching an international grassroots campaign to transform the narrative about and shatter the silence around dementia and through “Taking It to the Streets,” a global campaign during the week of September 18-24, 2023, during World Alzheimer’s Month. The Coalition is asking its 815 plus members and its partner organizations to host public-facing events, activities, and conversations that present a creative alternative to the fear, stigma and hopelessness surrounding dementia, and then share their celebrations and stories on social media using hashtags #reimaginingdementia, #takingittothestreets, #shatteringthesilence.

This new resource inspires alternative ways of thinking about dementia and encourages everyone to take part in making this a better world for people living with dementia.

Reimagining Dementia: A Creative Coalition for Justice has teamed with two-time Grammy Award winning musician Simon Law to create the original song, “Let’s Reimagine” featuring people living with dementia as soloists, chorus members and through spoken word.

Dementia-Inclusive Choices for Exercise (DICE) has developed a new series of tools and resources to help exercise providers create inclusive programs and spaces for people living with dementia and support their knowledge and confidence to continue or begin exercising.

Congratulations to our Co-principal Investigator and Co-lead, Sherry Dupuis, who has been appointed a University Research Chair, University of Waterloo.

Reimagining Dementia: A Creative Coalition for Justice is an international group of dementia activists and allies who share a diverse and humanizing vision of care and support that promotes inclusion, relationality, creativity, joy and the possibility of growth for everyone living with, and impacted by, dementia.

On January 19, 2018, Toronto, the film version of the researched-based play Cracked: new light on dementia was released along side a new website with access to download the film.

The Willowgrove Dream Weavers’ Culture Change Committee hosted a day of celebration at Chartwell’s Willowgrove Long Term Care Residence on Saturday June 3^rd.